The Muir Maxwell Epilepsy Centre conducts clinical trials and long-term studies of patients throughout their childhood and into adulthood.
Patients and or their data are studied to discover and understand more about the different factors which may affect the risk for epilepsy and that affect their type of epilepsy. We also recruit patients for trials.
This research centre represents an opportunity for the Muir Maxwell Trust to contribute to the practical application of leading global research to the treatment of childhood epilepsy. Ann Maxwell, Co-founder of the Muir Maxwell Trust
Central to our research strategy is the utilisation of routine admininistrative health, social and eductional data within the UK and other parts of the world. Scotland has exceptional data resources and health informatics capabilities, both of which are amongst the best in the world. Edinburgh has ambitions to become the data capital of Europe and the UK's first next-generation (exascale) supercomputer will be hosted by the University of Edinurgh.
Analysis and synthesis of these large scale, linked, and uniquely valuable data that are obtained through day to day use of the health service, provision of education and support from social services, enables us to fast track research in a more cost effective but meaningful way. The approach helps us to develop unique longitudinal epilepsy registries to enable targeted patient research including clinical trials as well as to improve health, education and care provision.
With these data we can accelerate accurate diagnosis, study the natural history and prognosis of the different types of epilepsy, recruit patients to trials, and inform health policy and practice through the provision of authoritative evidence and knowledge synthesis. With advances in technology, the use of artifical intellingence (AI) applied to such data raises the possibilities for even more rapid and innovative advances